Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Doctor's Visits, Emotional Health, Empowerment, Healthcare, living with chronic illness, Living with Illness, newly diagnosed illness

Truth Be Told

We teach children to tell the truth.  We take an oath to tell the truth when we get on the witness stand.  When we watch Superman, we hear “Truth, Justice, and the American Way”.  We’re caught up in the premise of truth and yet when we go to the doctor, we often hold back telling the truth.

Let me be clear, omission of facts (data) is not living your truth.  Minimization dilutes truth!  Trying to be or act the way our provider expects us to be/do diminishes our truth.

This is what I’ve learned after being a patient advocate for over twenty years.  If you don’t tell the truth, the raw, nitty gritty details, your healthcare provider is working with insufficient data.  If you don’t give your provider all the information, it’s like leaving ingredients out of a recipe…what a disaster.

Truth is a two-way street. If you aren’t honest with yourself, how can you be honest with your provider?  If you’re having a flare, don’t just believe it’s a passing thing and doesn’t need attention.  If you’re in pain, don’t dumb down the number on the 1-10 scale so the provider thinks you’re brave and can handle the pain with minimal intervention.  The opioid crisis is predicated on a lack of truth, making providers hesitant to prescribe narcotics for pain.

Truth is a funny thing because many believe it works on a sliding scale.  I want you to ponder the idea of truth on a sliding scale when it comes to your health and well-being.  I’ll give you an example.

One of the times I went to therapy, I was seeing a Jungian analyst.  He was a highly competent psychologist and I liked him a lot.  I trusted him.  After eighteen months of seeing him I walked into my session and initiated termination because I felt “healed”.  He was persistent in asking me if I truly believed what I was saying.  I’m stubborn!  I left therapy, telling myself I was healed.  Nine months later I was driving and pulled into a gas station to use a pay phone (I’m dating myself) and called him.  He answered, the first words out of my mouth were, “I need an appointment, I’m crazy” (not in the clinical sense, in my personal experience of how my life was going.)

I learned a lot about truth telling from that experience.  I learned that telling the truth didn’t diminish my worthiness or my life in my therapist’s opinion.  By telling my truth, I healed more quickly.  Best outcome was I felt lighter walking in my own shoes.

I encourage the patients I advocate for to be honest with their providers.  There’s a caveat here, sometimes patients feel they are telling the truth because they don’t remember/recall the complaints they’ve had between appointments.  It’s interesting that we believe an episode or experience isn’t important to tell the provider.  Every aspect of your health experience is important to the provider.

What’s the first truth you’ll tell?

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Doctor's Visits, Empowerment, Healthcare, living with chronic illness, Living with Illness, newly diagnosed illness

Still on the Journey…With Renewed Passion

I’ve been working in the healthcare field for over thirty years.  I’m a mental health provider, focused on the impact illness has on our physical, emotional, and spiritual lives.  When I started this blog, my intention was to share my insights and experiences as both a provider and a patient.  If you’ve read any of my blog posts or gone to my website (www.gregkatz.com), you know I’ve had an autoimmune disease most of my life.  In addition, I’ve nursed many animals with varying degrees of illness and written about their journey.

Over the past eighteen months, I’ve been enrolled and graduated with a graduate certificate in Health Humanities and Ethics.  It has opened my eyes to many unanswered questions for both patients and providers about their experiences in healthcare.  My classmates came from all healthcare arenas.  Our discussions punctuated the challenges of working in healthcare because of finances, policy, research, insurance, access, and a host of other dilemmas.  It has expanded my understanding of healthcare and made me a more informed and sensitive provider.

As I relaunch this blog, I wanted to share the direction I’m headed.  This year I’ll write about my experiences personal and professional.  I’ll explore how we can address doctor/patient relationships for optimal health.  I’ll share reviews of books related to both patient experiences and those of healthcare providers (educationally and in practice).  One of the key areas I’ll address this year is the concept of “legacy”. What are we leaving behind?  How will we be remembered?  What are we doing to improve our own situations and those of others?

I’m excited to explore these topics.  I’ll be sharing interviews with individuals showcasing personal experiences of illness as well as the handcuffs felt by many providers as they try and reconcile the realities of medicine with their intention for entering the field.

I hope you’ll join me on this journey and participate in the conversation.  Your voice is important because it’s about what we have in common, not what divides us (sound familiar).  I want all voices to be heard around the table because this is how we can advocate for what’s needed, what’s right, and what heals!

If you’d like to share your story (patient or provider), please email me at greg@gregkatz.com!

Posted in Autobiography, coping with chronic illness, coping with life threatening illness, Empowerment, Living with Illness, Storytelling

Advice from an Acting Teacher

I watch a lot of interviews because I believe they give a behind the scenes look at people’s lives and circumstances.  It’s similar to what Andy Andrews shares about autobiographies, no one ever wrote an autobiography who didn’t succeed.  The same can be true for interviews, only those who overcome challenges (I’m not referring to celebrities, it’s all walks of life) get interviewed.

Jake Gyllenhaal’s new movie “Stronger” about Jeff Bauman who survived the Boston Marathon bombing was the focus of the interview.  When asked about his process he shared advice from an acting teacher, “The target draws forth the arrow”.  What do you think about when you read that statement?  It shouldn’t be a surprise that when I heard the quote I jumped for a pad and paper because these words of wisdom will make you think about how you take on life’s challenges.

When faced with a life challenge, especially a chronic or life-threatening illness there is a primary target…wellness!  It’s similar to the saying Keep Your Eye on the Prize!  When we have a target to focus on, we are given something to aim our physical, emotional, and spiritual energies.

The doctor gives us the target.  The moment you hear the words “I’m sorry to tell you but…” you become an arrow.  You are summoned to take aim and make conscious decisions.  It will take the momentum you absorb from friends, family, medication, and faith to propel yourself toward the target.

Champion 24-Inch Bullseye Archery Target (2-pack)

There is something empowering about picturing yourself as an arrow, moving with force and speed toward a desired outcome.  My ongoing reminder is, you may not get well, but you can always get better.  Remember a target has rings with the bulls-eye in the center.  What do the outer rings mean to you?  What if you don’t hit a bulls-eye the first time or ever?  What level of comfort do you have focusing on other aspects of your life if wellness isn’t in the cards?

I hope when picturing yourself as the arrow, you equate it with being a real-life superhero.  Your journey is unique to you!  The outcomes may or may not be within your control, but where do you have control?  You have control over your determination, perseverance, and attitude.  You have the right to create a relationship with your doctor that is both respectful and honest.

We will all have targets that arise in our lives because challenge is part of the human experience.  The arrow you become shapes your narrative.  Your narrative is the force behind your momentum…keep it going!

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Emotional Health, Empowerment, Living with Illness, newly diagnosed illness

What Makes Us…Us?

We all have that moment when we look in the mirror and truly see ourselves for the first time.  It might be the day of a big birthday, graduation from school, or for some, the diagnosis of a chronic or life-threatening illness.  It’s a moment when clarity mixes with curiosity.  A split second when you ask the question, “Who am I?”

I spend a lot of time in my studio and I listen to podcasts to keep me company.  This is a recent shift because music used to be my go-to studio mate, but there’s so much to learn that the podcast has been like being in a virtual classroom.  Listening to podcasts coupled with watching interviews on the DVR gives me plenty of material to convert into creative iterations of my life.

On Super Soul Sunday Oprah interviewed Pastor A.R. Bernard.  A pastor for forty years he has one of the largest congregations in the country.  Well-spoken and thoughtful, he gives you the feeling like you’re sitting in his study ready to experience an epiphany.  He turned to Oprah and said, “Every personal crisis starts with an identity crisis!”  Can you think of anything more poignant when considering the diagnosis of an illness?

When we couple the question of mortality, quality of life, and identity in one equation we’re faced with a big challenge…who are we?  What makes us who we are?  What do we need to learn?  How will this/these experiences change my life, change me?

I’ve facilitated thousands of hours of support groups over my twenty-five years as a therapist.  The question of identity is center to a diagnosis.  All too often people surrender to a label.  All the qualities they embodied prior to the doctor saying, “I’m sorry to tell you….” disappear into thin air.  There is a tendency to redefine ourselves by our diagnosis, our side-effects, even our limitations.  What would happen if we redefine ourselves by adding qualities instead of subtracting them.  Imagine adding qualities like determined, dedicated, self-loving, and conscious to your personal identity!

If I’ve said it once I’ve said it a hundred times in these posts, “We may not get well, but we can always get better.”  So how has your identity been altered?  What do you see in the mirror that you may not have seen prior to your diagnosis, or other life challenge?  What new qualities will you inhabit with your ever-evolving identity?

We’re all in this together…I’d love to hear your thoughts!

Posted in coping with chronic illness, coping with life threatening illness, Emotional Health, Empowerment

The Constants In Our Lives

Do you remember taking algebra and having the constant in the equation?  Constants are important because they create stability.  When we have constants in our lives we have a sense of safety and security.  They say, “The devil you know is better than the devil you don’t know.”  I started thinking about what’s constant in my life because I work all over the country and it feels like things are constantly changing.  Knowing someone at home loves me even if I’m not there is critical to continuing my work away from home.  Experiencing support in the form of life updates keeps me in the loop even when I step out of the circle physically (but never emotionally or spiritually).

I was listening to an interview with Buddhist nun, Pema Chodron where she shared, “The sun is always there-sometime clouds are disguising it, but it never leaves.”  That’s the simplest way to describe object constancy, knowing something still exists even if we can’t see it.  How is that possible?  We experience the world through multiple senses and on top of that we have our innate sense of intuition.  When we pair all these sensory and experiential aspects we build a spiritual nest where in our hearts we know we’re protected.

I’m not sure why, but many equate constant with boredom.  You here things like same s**t different day.  If we’re coming up against the same challenges repeatedly and you think that’s a constant there’s a problem.  Incurring the same obstacles over and over is insanity.  It’s in that moment that changing your strategy is critical to moving forward.  The constant experiences in your life should be the things that support you, encourage you, provide you with a sense of security and allow you to take some risks to hopefully improve your pilgrimage to health and healing.

Remember, the sun really is there even if you can’t see it and so your humanity!  The world needs you!

Posted in Community, Empowerment

Your Tribe Will Get You Through the Unknown

If you follow my blog you know that I travel around the country for work, months at a time. I work long hours and in return my time off is really off. I’ve had the good fortune to visit some great cities and in each one I make sure and find my tribe. My tribe is anyone who engages in artistic endeavors, no matter the genre. In addition, I always make it a point to visit the local attractions such as museums and botanic gardens not to mention quilt shops and knitting shops.

My current work assignment is in Baltimore. My other blog www.manofthecloth.wordpress.com is where I focus on stitching as meditation. I was looking for a particular yarn and found that a local art supply store happened to carry this gorgeous 100% wool yarn. I made it over to the shop, found the yarn, but they didn’t have enough for my project. Little did I know, until I got up to the register, that they have back stock that isn’t on the floor. I found five more skeins of yarn and proceeded to check out.

The staff inquired if I was affiliated with the Art Institute as a student or faculty member, to receive the discount. I explained that I’m visiting from out-of-state for a work contract. Once I divulged where I lived, the two employees proceeded to tell me about all the art spots that I had to see while in town. First they were focused on fiber art, since that’s my medium, but I explained I’m open to anything art related. They gave me a list of locations, exhibitions, and venues to visit before I leave town. They made me feel very welcomed and over the next few weeks will give me things to see and do while I’m far away from home.

So who is your tribe? What makes a tribe? I find that it’s about common passions. It doesn’t matter what you’re passionate about, these folks exist all around you. Another way that tribes are formed is by common experience. I’ve worked in outpatient drug and alcohol programs and the bonds that are formed are very strong. When I worked at The Wellness Community, serving cancer patients and their families, they created a tribe. The tribe can tell you the things you need to do, see, look for, and experience, as well as where the land mines are to avoid.

I was fortunate to attend a graduate school that had the ancient Wisdom Traditions as the foundation of the curriculum. I met amazing people who were on the same pilgrimage as me. We took classes together, worked on our dissertations together, and fortunately graduated together. The experience of traveling with other seekers was amazing. It eased much of the anxiety of the process and increased my level of devotion to the work. My tribe supported and nurtured me throughout my journey.

Where we got the notion that it’s better to go it alone I’m not sure. What I do know from personal and professional experience is that having a tribe makes me feel a part of something larger than me. It gives me the sense of expansion and possibility that exists beyond what I can see in my world today.

Who makes up your tribe? How have they created a safe haven on your personal journey? How have you benefited from being part of a tribe? Be conscious of these questions and I think you’ll be amazed at the connections that are all around you!

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Empowerment

Who’s On Your Side?

We all need people on our side when things get rough.  We all face adversity and in those moments of despair, challenge, and simple questioning it’s important to know who is on your side.  I’ve seen the best and worst in recent days and I’d like to share both accounts with you.

I work with a woman who is currently one-thousand miles away from home.  Her husband and three children are home and she’s in contact with them throughout the day.  Recently, her daughter was accused of cheating while taking a final.  The teacher believe she saw the young woman looking down at her cell phone during the exam.  As luck would have it, the young woman’s phone was taken the night before by her father, so the cheating on those grounds was an impossibility.

What hurt the most is that the teacher accused the student in front of the class.  My colleague called the school, spoke with the administrators and got to the bottom of the matter.  The administrator agreed that the cheating would be expunged and then asked my colleague what she felt would be appropriate to rectify the situation.  My co-worker said that since her daughter was accused before the class, an apology before the class and the administrator agreed.  How’s that for knowing that someone is on your side.  This young woman knows that “right” is on your side and that there are people (her parents) willing to go to bat to defend her honor and integrity.

On the flip side is another recent turn of events.  Management for a company was challenged by their client about a business practice.  In turn, the upper echelon sent the front line managers and accusatory email with the tone of a reprimand.  I don’t know about you but my leadership training has always taught me that before taking action you get all sides of the story so you have a clear picture of the situation.  In addition, you hired your staff for a reason and if your client is having concerns don’t you have enough respect for your own staff to address them in a respectful and inquiring manner?  I heard the story and imagined myself in that predicament.  I can’t imagine feeling like my own company was against me.

So how does all of that related to the theme of Surviving Strong?  It’s critical that you believe your support team, both medical and personal are always on your side.  I remember reading Jerome Groopman’s book How Doctor’s Think, the story in the introduction of the book tells it all.   He tells the story of a young woman who was diagnosed with an eating disorder and for twelve years she was passed from one doctor to the next searching for the root of the problem.  It wasn’t until the last doctor set her records aside, took out a clean pad of paper, and asked her tell her story from the beginning.  He was on her side.  He knew that if he was going to help her it was imperative that he believe in her and her story.

In order to achieve peace of mind, strength of body, mind, and spirit, and a sense of community knowing who is on your side is important.  It’s a crazy world and knowing with your whole heart that you’re not in this alone can make or break your journey to health and healing.

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Emotional Health, Empowerment, living with chronic illness, overcoming adversity

Fear…It Doesn’t Do a Body Good

Fear is a topic that we talk about as something to “get over”. We’re told to face our fears, overcome our fears, and accept our fears and learn to cope with them. Why are we so fixated on fear? We know from years of research that fear creates metabolic changes. It paralyzes us emotionally and stunts us spiritually. If you go search “fear” on Amazon there are 150,052 entries for you to peruse. Do you have that much time and energy to resolve fear?

We tout the benefits of being above the animal kingdom with the ability to think and reason; perhaps that’s what’s getting in our way from health and healing! You can face your fear and do it anyway according to Susan Jeffers, but that may be easier said than done. What if we took on the Buddhist philosophy of non-attachment, would that be easier?

I was browsing Panache Desai’s book Discovering Your Soul Signature and he discusses fear. He shares, “Fear is an energy. It is an experience. But holding on to fear is unique to our human nature. Consider this: Every living being feels its fear and shake sit off. Cows, deer, fox, even bears-they all feel fear and move on. But we humans don’t. We accumulate fear. We hoard it and store it in our bodies.” That’s eye opening! How can we learn to interact with fear like water rolling off a duck; experience it in the moment as a message, but let it go once it served its purpose.

I believe in fear as a messenger. I first read Gavin de Becker’s book The Gift of Fear in 1996. His positive spin on fear as a personal and cultural alert system sits well with me. He wrote his book in the wake of the bombing of the Federal building in Oklahoma City. In addition, the news had a number of stories of disgruntled employees returning and killing those at the location of their previous employers.   Pay attention to fear. The visceral response is real and is attempting to get your attention.

Fear has a place just not center stage. Utilize fear if it allows you to be in the moment, but holding on to it keeps you in the past. Take a lesson from the cow, the deer, and the fox and allow fear to bring your focus to a particular threat, but don’t allow that threat to color every aspect of your life!

Facing adversity and looking for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to release fear through creativity?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Empowerment, living with chronic illness, overcoming adversity

Lessons from the road Part 4: Pay Attention to Change

The drive across country took me three days. The driving time gives me a lot of time to think, listen to interviews on the radio, and take in the sights of the country. When traveling during the warmer months there is a lot of road construction underway. What comes with road construction? Detours!!!

At the end of 2013 I drove home (to Colorado) from the Pittsburgh area. I had been on I-80 just like last week and there was a detour in the Indiana/Illinois area. Unfortunately I-80 was closed and I had to take the detour on I-90 and rejoin I-80 down the road. As it would happen, I wasn’t paying attention and I missed the return to I-80. It took me over two hours on I-90 to find my way back to the correct road. I even asked a toll booth attendant how to get to I-80 and her directions took me in a complete circle ending up back at that same toll booth….Arghhhhhhh!!!!!!!

On this journey I knew that there was a detour and was acutely aware of the detour signs. Lo and behold, I found I-80 without any difficulties cutting two hours off my travel time. I had learned my lesson about paying attention to the smallest details when driving. The detour signs were small and hidden, and if I hadn’t been aware of my previous mistake I might still be driving around the Chicago area in a fugue.

The same is true in our lives. Life presents interruptions that cause distress. It’s up to us whether or not we learn from these detours. How many people do you know who have made the same wrong turn over and over again thinking they’ll get it right without changing their actions? It’s important to learn from our missteps. It’s important to be aware that change requires attention. It’s important to move cautiously through new territory or understand that there’s a huge potential that you’ll be lost taking your time and energy.

When we pay attention on any journey, whether it is on an interstate made of pavement or the interstate of your life, we reach our destination with less stress. We are available to notice the nuances that present themselves allowing us to make subtle shifts in our plans and giving us new opportunities to learn.

Feeling lost or undirected?  Looking for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to explore the road of life in a creative way?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Empowerment, living with chronic illness, overcoming adversity

Interior Designers, The New Motivational Experts?

We know that where you live impacts how you live. Your environment effects how you move through our day. Your home should be your sanctuary. It should provide shelter, comfort, protection, and even inspiration. Needless to say I was surprised when I was watching an episode of Fixer Upper on HGTV. The designing team, a husband and wife, were transforming the space of a single woman. It’s one thing to do the major renovations, but what about the actual decorating?

Interior designers are not only worried about the configuration of the space, but the aesthetics. The accessories are just as important as a sofa. They are looking for ways to create a complete experience. In this episode the designer decided to put an inspirational phrase on the wall, “Today is a good day for a good day!” It shouldn’t be a surprise how delighted the homeowner was with a mantra front and center in her living space. Is that what we need, an interior designer to become our new gurus? Obviously I’m being facetious, but how do you remind yourself of the importance of a positive attitude when facing a challenge?

The evidence is in that the body and mind work together. It’s important that we infuse our cells with positive energy giving each of us the much-needed boost when facing adversity. It seems that we have short memories when it comes to keeping positive. It takes work, that’s a fact. However, can we afford to let negativity rule our actions and decisions?

We all find ways to keep positivity in our consciousness. Creativity is one way to increase positivity. Ultimate self-expression allows us to celebrate what is working in our lives and release what is holding us back by telling our stories. Exercise reinforces the message of self-care. Volunteerism punctuates our connection to compassion. It doesn’t need to be a saying on the wall, but finding some way(s) of keeping positivity in your consciousness will alter your brain chemistry. You’ll find new solutions to your challenges, and will create new opportunities for growth.

Today’s thought, “Today is a good day for a good day!!!!”

Facing adversity in your life?  Looking for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to develop creative strategies for having a good day?  Visit http://www.timetolivecreatively.com