Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Emotional Health, Healthcare, Living with Illness, overcoming adversity, Spirituality and Health, Storytelling

How Does It Feel to Be You Right Now?

We live in tumultuous times and it’s scary waking up every day with so much uncertainty in the world.  The truth is, even when things are in alignment politically, socially, and atmospherically, the person we are is always in the uncertainty zone.  How is that possible?

We’re complex beings physically, mentally, and spiritually.  If you look around your community, watch the news, or truly listen to the stories told by your friends and family you come to understand the depth of our complexity.  Unfortunately, along with complexity comes fragility, that sliver of vulnerability that exposes our human Achilles heel.

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My father called me a couple of days ago and opened our conversation with, “You know I’m at an age where a lot of people I know are dying.”  If nothing makes you vulnerable (at least in your own mind) mortality usually creates an emotional and spiritual gash in our armor.  It makes everything frighteningly real.  It exposes our imperfections while simultaneously accentuating our strengths.

We greet one another with the age-old question, “How are you?”  What are we really asking?  If you ask the question, are you prepared for the truth? I like the question “How does it feel to be you right now?”  It’s a question of connection.  It gives the person you’re connecting to the ability to be in the moment.  It gives each of us the opportunity to understand what it’s like to live in the body, mind, and soul of another human being.

I was involved in an ethics discussion about the interaction between doctors and their patients.  We were exploring the idea of empathy. When we have these discussions, the debate is often about sympathy and empathy.  Noted anthropologist, and one of my mentors, Angeles Arrien expanded the continuum.  Her research and experience shared that sympathy amplified suffering because it emphasized the pity we felt for the another.  Sympathy often comes from the vantage point of “better you than me”.   When we’re empathetic, we end up doing the work for the other person, letting them off the hook because we take on the pain.  However, if we feel compassion we don’t have to go into the emotional state of the other, but we can be totally present.  The state of presence is healing.

Where are we going with all of this?  I want to be present with you.  I want to know what your life is like right now because it’s your true story.  When you share how you are right now there’s an aliveness we can experience any other way.  Let’s shift our perspective and begin asking this very important question and see how our experiences with others change and deepen.

Posted in after the diagnosis, overcoming adversity

We Need To Change How We Interact In This World

Valentine ’s Day is right around the corner and stores are displaying merchandise and cards for the occasion.  I started thinking about the messages sent by some of the big companies like Ma Bell and Hallmark and what’s been lost with the invention of Facebook and other social media.  Ma Bell wanted us to “Reach Out and Touch Someone”, and Hallmark told us buying cards, “When You Want to Send the Best”.  These two company taglines spoke more, to me, than just about commercialism, but how we interact in the world.

I’ve watched the number of birthday cards dwindle significantly over the past four years.  I used to have a mantle full of cards, and now it’s down to a select few.  Don’t get me wrong, I get plenty of Happy Birthday messages on Facebook, but it’s different.  We no longer have to plan on how we interact.  We are now able to wake-up in the morning and see who we need to send a birthday wish, congratulate for an achievement, or commiserate about a dilemma.  What happened to sentiment?  Have we lost the ability to connect more than electronically?

I sent out a bunch of cards today because there are people who I haven’t spoken to in a while that I wanted to send a special message.  I want to appreciate certain people who have supported me, kept me in the loop of their lives while I’ve been traveling the country.  It gave me an opportunity to say I took the time to spend a few minutes devoted to connecting with you.  I know I may be a bit over the edge, but social media has left too many people connected to others with only a dotted line, and they’re still lonely.

When going through difficult times we need to make those phone calls, send those calls, and show that we’re making an effort and that this person matters to you more than just a count on your Facebook page.  Illness, divorce, death, financial struggle to name a few are life events that require deeper connections to emerge with a sense of peace and to have the ability to continue on life’s pilgrimage!

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Having a Voice in Healthcare, living with chronic illness, overcoming adversity

I Wish My Vet Saw People

If you follow me on Twitter (@GregKatz2), Facebook, or on these posts you know I have a black lab named Tashi that was diagnosed with MRSA (Methicillin-resistant Staphylococcus aureus) about seven years ago. Half her life has been spent visiting doctors, taking a host of medications, and having numerous tests where she’s been poked and prodded to get cultures. Throughout this process she has endured pain and discomfort, never giving up her loving nature.

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After fighting her most recent infection for the better part of a year, I’ve had the chance to be grateful for her doctor (Dr. B). He’s dedicated to her well-being. He took her case and as a result changed the infection control policies at the Veterinary Hospital. Most of all, I’ve watched him spend time with Tashi, never giving up on her and always trying to make her as comfortable as possible. What could he teach medical students who will eventually be treating us in doctor’s offices and hospitals?

Meet the patient where they are. I’m fortunate because I feel as if I’ve become partners with my medical providers. I always ask questions and I’m aware of the latest research on my own conditions. There is no power play in the exam room. Our vet is very sensitive to the power dynamic and when he examines Tashi he sits on the floor so he can see her eye-to-eye. He will often bow his head so that she knows that he doesn’t have to be dominant, in theory. He’s also the keeper of the treats, always a way to endear himself to her.

Follow-up is very important to the health and healing process. I feel like I’ve attracted patient positive doctors. They’ve been concerned and their follow-up has been extraordinary. One of my doctors had ordered some lab work and I didn’t do it within a timely manner. I received a phone call from him saying he hadn’t seen the results come across his desk and wanted to make sure I had gone for the lab tests. I felt like he was definitely looking out for me. Dr. B goes above and beyond the call of duty. After Tashi has an office visit, the phone rings about 8pm a couple of days later (after the vet office closes), the doctor checking to see if she’s making progress. Wouldn’t you like a follow-up call from your doctor to see if you’re making progress?

Dr. B always dialogues about side-effects and outcome strategies. He’s clear about what I’m willing and unwilling to do for treatment. Some of the medications Tashi has been on have had such horrible side-effects that they have been removed from the repertoire of possible treatment strategies. Minimizing suffering while seeking treatments that work is paramount to us working as a team. Dr. B doesn’t make it a “my way or the highway” session.

What can you take away from my experience with a vet that treats Tashi as if she were a person? Never allow your doctor to talk down to you. Be clear that you may not have gone to medical school, but it’s your body, your health, and your journey. Let the doctor know what’s important to you regarding the relationship. I always share with the doctor my professional background in healthcare so he knows from the start I’m going to be very involved (sometimes too involved when I begin to self-diagnosis. Read my post on anchor bias).

Select a doctor that makes you feel like you’re a priority. Unfortunately I spent five months taking Tashi to the vet a minimum of three times a week for treatment so I had a lot of time to ask questions and discuss her progress. Stay in contact with your doctor so he has up-to-date knowledge of how you’re doing. Many healthcare systems have email for their staff; use it! Don’t be afraid to ask questions in between appointments.

Lastly, find a doctor who has a strong commitment to compassion. Dr. B has always treated Tashi as if she were his own. He has done amazing amounts of research on her condition and is always looking for the latest and greatest treatments for her condition. I wish he saw humans because I’d be his first patient!

Looking to explore how to select a physician that is willing to partner with you?  Looking for education, support, and inspiration when facing a health challenge?  Visit http://www.survivingstrong.com

Want to explore how art improves healing?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in Caregiving, coping with chronic illness, coping with life threatening illness, living with chronic illness, Living with Illness, overcoming adversity

The Unified Person

One of the things I had to break myself from doing when I spoke was splitting parts of myself. I can look back and see how I had confused indecision with no commitment. If you’re wondering what I’m talking about let me give you an example. I would be discussing an issue and would find myself saying, “A part of me….” How is that possible? Did I really think that only the cells in my right pinky believed a particular thing and the rest of body was in revolt? I’ve spoke with many people over the years that try and exile a part of the body that is causing them trouble but that never seemed to work. Unifying the body, mind, and spirit is the only path to health and healing.

If we divide ourselves in physical, emotional, and spiritual beings it’s like having three people fighting for limited resources. When we unify our forces we create an incubator for healing. It’s that incubator that provides a safe place to nurture a strategy for growth, renewal, and peace. It takes some work, but it reaps huge rewards.

Dr. Jeff Miller shared, “Body and soul cannot be separated for purposes of treatment. For they are one, and indivisible. Sick minds must be healed as well as sick bodies.” Having had the privilege of spending thousands of hours with individuals facing chronic and life-threatening illness I understand the importance of a unified front. You can’t play the game we did as kids, if mom says no ask dad, because we diminish the odds for health and healing.

We have to remember that when we’re facing emotionally draining situations our bodies defenses are compromised. The ideal situation is that when one of the three components that makes us whole is feeling compromised the other two can step in and bolster the compromised part of our being. If you’re emotionally drained your faith may take over, sending in reinforcements helping until you’re emotionally restored. (I’m not talking about mental illness, that often requires the help of a mental health or medical professional)

We all have to remember that all three parts of our being won’t be firing on all engines all the time. There is a dance that happens between the three and understanding that our being is always in a fluid state will make the ebb and flow more natural and not so scary!

Experiencing the ebb and flow of the physical, emotional, and spiritual parts of your life?  Visit http://www.survivingstrong.com

Want to explore how to create a natural state of balance with body, mind, and spirit?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, living with chronic illness, Living with Illness, newly diagnosed illness, overcoming adversity

Dead Sea, Black Sea, Red Sea…Pink Sea?

You may be wondering is there really a pink sea; Google it and see what comes up. The truth is there is no Pink Sea, but today is October 1st and you may be experiencing a Sea of Pink. Today begins Breast Cancer Awareness Month. The use of the color pink has brought enormous attention to the Breast Cancer community. It has become defining, creating a community of those diagnosed with breast cancer, those living beyond breast cancer, and their families.

I was in Houston in April at the annual conference of the Arts and Health Alliance. While I was in town walking the main road an army of pink passed me. They were in the midst of their annual Avon Walk for the Cure. Women, men, and children all wearing pink to show their support for the Breast Cancer community.

The color pink linked to the breast cancer community has created a link and a way for community members to show their connection to the community. It becomes more prominent this time of year when buildings change out their white bulbs for pink bulbs shining a pink glow against their buildings in support. Pink ribbons are in full bloom like a field of wild lavender. It’s truly amazing that an illness has gone beyond the diagnosis and has created a community of hope, inspiration, and education.

The breast cancer community has created a culture and that’s not an easy thing to do. They have brought together the medical community, the corporate community, and individuals for a common cause. We’ll see a month filled with news stories about mammograms, treatment updates, and news of new medications such as Perjeta (a drug given FDA approval this past week).

You may not be a fan of the pink culture. Barbara Ehrenreich, noted author, is anti-pink. On an NPR interview she was clear that she didn’t want to be buried with a pink Teddy Bear. She doesn’t want to be defined for having an illness. She may not want to be defined by the pink culture, but it has served many raising money and pressure to find a cure and new treatments.

It doesn’t matter if you support the pink culture. It does matter that you support those facing Breast Cancer and all other illnesses. Perhaps we can find ways for other illnesses to find a culture that will help make their need more notable!

Are you or a loved one facing Breast Cancer?  Looking for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to heal through art?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, Caregiving, coping with chronic illness, coping with life threatening illness, living with chronic illness, Living with Illness, newly diagnosed illness, overcoming adversity

Is It Chic to be Sick?

Illness is a difficult experience and is usually something that is dealt with in the privacy of one’s home. I guess that times are changing because there seems to be a new trend on television; shows revolving around illness. I guess the networks and cable have had a topic epiphany; it’s chic to be sick.

Don’t get me wrong; I’m watching the two shows that have come to my attention. While watching the shows I’m riding on the coattails of the writers looking at the themes they are bringing to consciousness giving the public an insiders view of illness.

This summer saw ABC Family launched Chasing Life, the story of a twenty-four year old just starting out in her career as a reporter who is diagnosed with leukemia. Of course there are a few side stories that make it a drama, but it does touch on the process of being diagnosed, going through tests, the social ramifications of the diagnosis, and at the end of the season the start of treatment.

The show punctuates the common themes of denial after a diagnosis, how illness interrupts life’s plans, and the importance of having a support group/team to help you through the process of health and healing. I commend ABC Family for taking on this precarious topic. It’s not a mainstream storyline, but the cable network is exploring real life scenarios giving us a glimpse of the world of illness.

The other show that began this past week is the Red Band Society. Fox is taking on the topic of illness amongst kids who are in a long-term inpatient Children’s Hospital. The show has only aired one episode so it’s difficult to know how the storylines will progress. We’re only getting the back stories of the patients and it may take some time to see how the writers attack the multiple issues related to serious illness.

I’m glad that shows are beginning to emerge around the theme of illness. Illness is something that will touch all of our lives. My hope is that these shows will give us a platform to discuss these topics that are usually taboo. I hope these shows will give those facing a chronic or life-threatening illness to seek support from groups, a therapist, a coach, or spiritual director.

Making illness the central theme of a show takes guts. I hope the shows make it because we need this type of cultural exposure to the issues surrounding illness and healing!

Facing a chronic or life-threatening illness?  Searching for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to explore health and healing through creativity?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, living with chronic illness, Living with Illness, overcoming adversity

Being A Change Agent

Are we all looking for change? Change seems to be a buzzword, but I’m not sure what it’s a buzzword for. Change leads us to think about improvement, correction of going off course, or ways to become fabulous. We all know people in our history who have changed the world; Gandhi, Martin Luther King Jr., and Marie Curie come to mind. Are you up for that type of responsibility?

I was watching the new Fox show Red Band Society (a must watch) and the writers captured the true nature of change in a single line, “You don’t have to change the world, you just have to change your world.” Can you think of a simpler thought? It scales the amount of effort needed and increases the likelihood that you’ll achieve greater results.

When facing any type of life interruption we’re called to make changes. It would be nice to keep the status quo, but often that was a factor that led to the interruption.   Change isn’t bad and if done consciously and with commitment we can move further along on our health and healing journey.

I know there have been many times in my life when I wanted or needed to feel responsible for changing the world. I felt weighed down and overwhelmed. I sabotaged myself because the goal was so grandiose and unrealistic that sabotage seemed to rescue me from me. I feel fortunate to have adopted the idea from the Red Band Society prior to the line being spoken on last night’s show. Having responsibility for me allows me to make noticeable changes and in turn that overflows to the people, organizations, and community around me.

Going back to school was one of the most important ways that I changed my own life. I met people, encountered ideas, and engaged in activities that enriched and expanded my consciousness. I submerged myself in a passion of studying art and healing and that brings joy to my life. It was a long journey but the result was a degree and connections to others who are making personal changes and impacting their own communities.

How will you change your world? What is one thing you can do today to begin the change process? Let us know and let’s start a conversation about how we can all change our own world!

Looking to make changes in your life and need education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to explore change through creativity?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Emotional Health, Empowerment, living with chronic illness, overcoming adversity

Fear…It Doesn’t Do a Body Good

Fear is a topic that we talk about as something to “get over”. We’re told to face our fears, overcome our fears, and accept our fears and learn to cope with them. Why are we so fixated on fear? We know from years of research that fear creates metabolic changes. It paralyzes us emotionally and stunts us spiritually. If you go search “fear” on Amazon there are 150,052 entries for you to peruse. Do you have that much time and energy to resolve fear?

We tout the benefits of being above the animal kingdom with the ability to think and reason; perhaps that’s what’s getting in our way from health and healing! You can face your fear and do it anyway according to Susan Jeffers, but that may be easier said than done. What if we took on the Buddhist philosophy of non-attachment, would that be easier?

I was browsing Panache Desai’s book Discovering Your Soul Signature and he discusses fear. He shares, “Fear is an energy. It is an experience. But holding on to fear is unique to our human nature. Consider this: Every living being feels its fear and shake sit off. Cows, deer, fox, even bears-they all feel fear and move on. But we humans don’t. We accumulate fear. We hoard it and store it in our bodies.” That’s eye opening! How can we learn to interact with fear like water rolling off a duck; experience it in the moment as a message, but let it go once it served its purpose.

I believe in fear as a messenger. I first read Gavin de Becker’s book The Gift of Fear in 1996. His positive spin on fear as a personal and cultural alert system sits well with me. He wrote his book in the wake of the bombing of the Federal building in Oklahoma City. In addition, the news had a number of stories of disgruntled employees returning and killing those at the location of their previous employers.   Pay attention to fear. The visceral response is real and is attempting to get your attention.

Fear has a place just not center stage. Utilize fear if it allows you to be in the moment, but holding on to it keeps you in the past. Take a lesson from the cow, the deer, and the fox and allow fear to bring your focus to a particular threat, but don’t allow that threat to color every aspect of your life!

Facing adversity and looking for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to release fear through creativity?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Emotional Health, Illness Narrative, living with chronic illness, Living with Illness, overcoming adversity

Play to Your Strengths

What happens if everyone including you believed that our life would take a specific direction and then a twist of fate changes that direction? What if everything you worked for crashes and burns and you have to reinvent yourself? Know anyone like this? Well if you follow football then you do know someone in this position, Tim Tebow.

Tebow, the young player with enormous promise had a difficult time in the NFL. As it turned out his professional career as a player was short lived, but he has reinvented himself. During his time in the NFL his fame, constant news coverage, and his faith led him to create a foundation helping children going through tough times. Proof of this “Phoenix rising from the ashes”, Tebow is now part of the team on ABC’s Good Morning America. His segment has been titled Motivate Me Monday!

The first down of Tebow’s segment was a hit. The story showed the resilience of ten-year-old Devon Jackson. Jackson was diagnosed with meningitis at age eight and had both feet amputated six inches below the knee. His passion for football was intercepted but not for long. The young athlete learned to walk on prosthetics, but he was still benched from playing because he couldn’t run until someone donated a pair of blades returning the young football player to the playing field.

Jackson shows amazing resilience. When asked about what he loves about being able to play he shared, “I love the way the wind feels in my face.” When I heard the young athletes experience I thought about what do I take for granted in my daily life. If something as simple as the wind in one’s face is a blessing then what else are we allowing passing us by without noticing the magic of the experience?

The segment showed that both young and a bit older can recreate a life of gratitude. Tebow and Jackson both took adverse situations and utilized their strength and resilience to achieve greater life experiences. Devon Jackson is Tebow’s starter and that makes Tebow a great coach, inspiration, and motivator. I hope I can take the lesson from Tebow’s playbook and utilize my own strengths motivating others to enhanced health and healing!

Facing adversity?  Looking for education, support, and inspiration?  Visit http://www.survivingstrong.com

Want to play to your strengths creatively?  Visit http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, living with chronic illness, overcoming adversity

Life’s Barnacles

I’m love the water but I’m not a sailor in any way, shape, or form. I do love to be on a cruise ship but I don’t think the captain is going to let me steer the ship. In order for boats of any shape to sail smoothly they need constant maintenance. One of the things that boats have to contend with are barnacles; those little creatures can create major problems for any floating vessel.

Many years ago I was spending time with my oldest niece (who is currently 21). A friend of mine allowed us to use her pool and we went for a swim. My niece was about three at the time and was taking swimming lessons. If you’ve ever had kids in swim lessons you know the levels are differentiated by names like tadpole and shark. My niece was in the water traveling the edge of the pool and she called to me, “Uncle Greg….I’m a barnacle!” It brings back very fond memories, but it also makes me think about what we think are the barnacles in our conscious walking lives.

I want you to think about those things in life that grab on to you and won’t let go. Consider the amount of drag on your life as a result of these “barnacles” or life interruptions. When you are saddled with life’s barnacles you expend energy just trying to stay afloat. It impedes any progress on your health and healing journey.

You never know when something will attach to you until it begins to cause problems. It requires you to seek within your heart and soul what’s dragging you down. Once you find the barnacles, like a boat, the goal is to remove it to resume smooth sailing. How you rid yourself of the barnacle may vary. Read Dan Harris’ book 10% Happier and try meditation to remove emotional barnacles. Have a creative streak then Julia Cameron’s The Artist Way will take you through a process that has been holding you back in your artistic endeavors. Perhaps you need to read Pema Chodren’s The Places that Scare You: A Guide to Fearlessness in Difficult Times, addressing the spiritual barnacles that impede your journey to wellness.

It’s cute to be a symbolic barnacle in the pool as you’re learning to swim, but those real life barnacles will slow you down, even derail your journey to health and healing. Promote smooth sailing by checking for life’s barnacles and removing them to create a sense of wholeness body, mind, and spirit!

Want to remove life’s barnacles?  Visit http://www.survivingstrong.com

Learn to use your creativity to remove life’s barnacles at http://www.timetolivecreatively.com

Follow me on Twitter: @GregKatz2