Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, living with chronic illness, Living with Illness, Storytelling

Journey to the Center of the Story

I’m in the midst of completing my doctoral dissertation.  It’s a long and arduous process at least that’s what I thought until I went on a trip to California the past 2 weeks.  I spent time with a nonprofit, Visual Aid, who works with artists facing life-threatening illness continue to create.   They were gracious enough to assist me in recruiting potential interviewees.

I was sitting in the first interview and felt like I had come home.  I was interviewing an artist whose story was so authentic, hopeful, and complex (not meaning difficult, but layered like his art).  As I moved through the interviews I found the same qualities with each participant.  I was taking a journey to the depths of storytelling that I’ve never experienced, even in my thousands of hours of hours working with psychotherapy clients individually and in groups.  These twelve artists shared with me verbal canvases that were masterpieces.  Their stories matched the work, and their spirits were the greatest masterpieces of all.

It confirmed the importance of our stories.  The interviews catapulted the story to the top of my list when it comes to inspiration, hope, and possibility.  These are three qualities that are crucial when living life with a chronic or life-threatening illness.

While in San Francisco I was reminded by the importance of our stories.  I went to the Contemporary Jewish Museum, and in the corner of one of the exhibits was a booth with the words StoryCorps written at the top.  National Public Radio airs stories of people from around the country who step into one of these booths and record for all of posterity a story that is important to who they have become and how they got there.  It was one more sign that the story was at the heart of the dissertation.

If you know an artist with a life-threatening illness who might be interested in telling their story, I hope you’ll pass on my information.  I think this project will impact how we look at illness, and the stories of those who tell them.  Please refer them to greg@survivingstrong.com and look for more stories!

Posted in living with chronic illness, Living with Illness, Spirituality and Health, Storytelling

Hildegard of Bingen in God’s Hotel

Prior to moving to Colorado I lived in the Bay Area for fourteen years.  I’ve been involved with health and healing since I started graduate school and that’s where my heart still resides.  I moved to the Bay Area from the east coast in 1986 at what would become the AIDS crisis at a time when medications weren’t very effective and people were dying all the time.

I’d met a woman who was a doctor at Laguna Honda Hospital.  It was a very old building and was considered an almshouse, a place for those who were poor and very sick.  For many, it became San Francisco’s AIDS hospital/hospice with its looming old structure tucked away, almost like a haunted mansion.  I always wondered about Laguna Honda, but never delved into its mysteries.

Then I ran across Victoria Sweet’s book, God’s Hotel.  She’s a doctor at Laguna Honda Hospital and has been for more than twenty years.  I could go on and on about the hospital, but it’s Dr. Sweet’s attraction to Hildegard of Bingen that caught my attention.

Hildegard of Bingen was a nun, mystic, medical provider who lived in the 12th century.  Dr. Sweet, after years of medical school and training went and received her PhD in history and social medicine focusing on the work of Hildegard of Bingen.  What Dr. Sweet shares is Bingen’s philosophy about the prescription of time when it comes to treating a patient.  She also comments on how Bingen’s triumvirate of care, Dr. Diet, Dr. Quiet, and Dr. Merry were methods of treatment not just comic relief as we might believe today.

Dr. Sweet’s devotion to invoking the essence of time into her treatment plans, as much as she was allowed in modern medicine is a tribute to her knowledge of Hildegard of Bingen’s methodologies, and her believe in the human body and the human spirit in healing.

One of the beautiful aspects of “God’s Hotel” is how Dr. Sweet describes her personal pilgrimage.  In addition to walking the Santiago de Compostela, she discusses her personal pilgrimages experiences by her interactions with staff and patients at Laguna Honda.

So what do you think about Dr. Diet, Dr. Quiet, and Dr. Merry?  In case you’re wondering it’s about diet, rest, and joy.  The book is a great read not only for the history of Laguna Honda Hospital, but for the incredible devotion Victoria Sweet takes us on both personally and professionally.  She’s the type of doctor we all wish we had.

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Storytelling

Who Are Your Travelers?

One of my favorite books is “The Traveler’s Gift” by Andy Andrews.  I recommend that book to everyone I meet and at every talk I give, no matter the audience.  I believe the book is a great way to focus on what’s important in your life and gives some clues on how to make changes in your life if that’s what you desire.

The book is part historical fiction and part self-help.  It takes you on a journey both through time and within, exploring your soul.  The book’s main character after suffering horrible circumstances in his life has a car accident and that prompts his journey back through time.  His journeys take deliver him to meet with historical figures and they have deep conversations.  As the main character gets ready to depart, the historical figure gives him a message, the lesson he needed to learn from that individual.

The “seven decisions”, the lessons learned from the historical figures are delivered by those such as Anne Frank, Christopher Columbus, Harry Truman, and Abraham Lincoln, just to name a few.  These prominent figures impact the main character profoundly (yes I now it’s not real), but the lessons are very real and are applicable no matter what’s going on in your life.

So I started wondering, if I were the main character in the book, whom would I hope to meet from the past that would potentially influence my life.  I know that in the book the historical figures were chosen by the Archangel Gabriel, so if that were an option for me that would be great.  However, if I were choosing my own, what criteria would I be looking for and what lessons would I be hoping to learn?

I encourage you to read this book, utilize the “seven decisions” and then think about who your travelers might be?  I’d love to share this journey with you.  Feel free to enter your journey in the comment section below or email me at greg@survivingstrong.com.

Posted in after the diagnosis, coping with chronic illness, coping with life threatening illness, Storytelling

Where is the Story Going?

Ever begin a book and after about 50 pages wonder where the story is going?  I have friends who must finish a book once they start it; I’m not that way.  If I don’t see where the story is going and I’m not hooked I abort the mission and move on to something more pleasurable.  Life is too short to get caught up in a bad story.

Interestingly real life works the same way.  We all have a story to tell.  We all have a story that is near and dear to our hearts, but not necessarily to others; especially if we tell the same story over and over.  You may be thinking about abandoning this post right now, but hang with me for a moment.  It’s not that people in your life don’t love you, but often we’re waiting to hear coming attractions or a sneak preview of one’s life to keep us engaged.

One of the fascinating things about your life story is that for those you’ve known a long time they hold your history.  They can help you reflect and remember those times you’d probably like to forget (like the naked pictures taken of Prince Harry).  So what happens to your story following the diagnosis of a chronic or life-threatening illness?

I’ve sat with thousands of people and facilitated thousands of hours of support groups so I’ve heard a lot of stories.  Undoubtedly one of the most powerful moments in a group is when the facilitator or another group members asks, “So what does this mean for tomorrow”?  The inquisitor wants to create a spark in the person sharing to challenge them toward movement.  We’re not talking about making major changes, but if you’re sharing something with others, they want to know why?  What is it you’re expecting from those who are listening to your story?  If you’re only intention is to expel hot air then maybe a support group isn’t for you.  However, if you share your story with others and you’re able to get a glimpse of what’s possible based on other’s stories, then you have moments of hope and possibility.

How can I spark you today to ask yourself, “How is what I’m sharing going to influence my life tomorrow”?  “What will I take from the responses I receive from those with whom I share my story”?  “How will telling my story impact the chapter on health and healing”?  “By telling my story, what’s possible when I turn the page”?

I’d love to hear your stories!  You can share them in the comment section below or email at  greg@survivingstrong.com  Also, check out the videos at www.survivingstrongtv.com.

Posted in Storytelling

Do You Really Know Your Own Story?

Terry Gross of NPR’s “Fresh Air” is one of my favorite talk show hosts.  I think she’s inquisitive and very smart.  One of the things about the show is that they often replay interviews with individuals when they die as a memorial.  A couple of weeks ago I was listening to Gross interview Barbara Lea, a cabaret singer who died on December 26, 2011.  The interview was fascinating.  I went on to read her biography listed on her website, www.barbaralea.com, in the biography it states that she had a been a minister for 20 years in the Church of Actualism.  When I read that the statement she made came to life.

We all know how I feel about stories; I love them.  I believe that our stories are the portals to wholeness.   I believe that our stories are the threads that connect us to each other.  I believe that our stories unlock the mysteries to our body, mind, and spirit and that is crucial when we’re looking to get better or well.  Our stories are why pathographies, telling our story in support groups, and our personal experience of our health challenge directs our journey to wellness.  During the interview with Terry Gross, Barbara Lea stated, “You have to know the story before you tell the story.”

It’s a rather simple statement, but it’s something that I believe in very strongly.  Too many people like to tell their story, but aren’t necessarily connected to their story.  We have a tendency to tell a story that makes us look good because we believe that we’re being judged based on our story.  The problem with this modus operandi is we begin to distort our story the more times we tell it.  So what was Barbara Lea encouraging us to do?

Lea was encouraging us, possibly even challenging us to become one with our true story.  Our story is our legacy.  When we connect to our true story we stand a little taller.  We unify our body, mind, and spirit decreasing the inner struggle that takes place with so many people.  The big question is how do we connect to our own story?

If you haven’t engaged in deepening your connection to your own story, now is the time.  Creating a sacred space to engage in this exploration is important.  We need the safety and open environment to allow ourselves to begin this personal pilgrimage.  There’s no doubt this is a journey.  It is an ongoing process and each time we engage in this type of self-exploration we add more details to the story.  Our stories become more colorful, rich, and healing.

I encourage you to find a way to start this personal pilgrimage and begin your journey to wellness.  It’s a life-altering experience for the good.  When you’re facing any kind of personal challenge, health or otherwise, knowing your story allows you to tell your story with stronger conviction.  Our capacity to tell our deeper story allows our healing to unfold; this gives our bodies the space to expand its wellness capacities…isn’t that what we all want?